Julia Lamb, who has a degenerative muscle disease, pauses following a news conference in Vancouver, B.C., Monday, June, 27, 2016. Lamb is challenging Canada’s physician-assisted dying law just days after it came into force. (Jonathan Hayward/The Canadian Press)

Chilliwack woman wins right to medically assisted death after three-year court battle

Julia Lamb has been the lead plaintiff in a legal battle to ease restrictions on Canada’s assisted dying laws

A Chilliwack woman who spearheaded a nearly four-year fight to access medically assisted dying in Canada will be able to die in her own way when she requests it.

Julia Lamb, who has spinal muscular atrophy, announced alongside the BC Civil Liberties Association on Wednesday that thy have requested an adjournment in their legal battle against the federal government after an expert witness supplied by Canada’s counsel said that Lamb, 28, would be able to qualify for an assisted death.

“This is an enormous victory for our client and for the many Canadians like her who might find themselves suffering unbearably with no end in sight,” said Grace Pastine, civil liberties association litigation director, during a news conference in Vancouver.

Lamb’s plight to gain access to medically assisted dying – or MaiD – first began in 2016, after the federal government Bill C14 – legislation that only allowed assisted dying to be requested by those who were near death or suffering from a terminal illness.

ALSO READ: Death is a medical choice, but not for everyone

The legislation came despite a 2015 Supreme Court ruling, known as Carter v. Canada, which directed that medical assistance in dying should be available to consenting, competent adults with “grievous and irremediable” medical conditions that are causing enduring suffering that they find intolerable.

Under Canada’s law, Lamb as well as others with diseases such as multiple sclerosis, traumatic spinal injury, Parkinson’s disease and Huntington’s disease would not be eligible for medical assistance in dying, the civil liberties association argued, therefore violating the charter by excluding people who could live for years with medical conditions that cause intolerable suffering.

READ MORE: Supreme Court upholds Canada’s right to reargue facts in assisted-dying case

Spinal muscular atrophy is a degenerative disease with no cure that Lamb has said will lead to years of unbearable suffering by robbing her of the use of her hands and forcing her to use a ventilator to breathe and a feeding tube to eat.

“I feel like a shadow has been lifted now that I don’t have to live in fear of the future,” Lamb told a room full of reporters Wednesday.

She added that she’s relieved others won’t feel trapped in intolerable suffering and instead of “fearing their future, it can bring them choice, agency and peace.”

“Where I go, my spinal muscular atrophy comes too. It is something that I have lived with since birth and was diagnosed with at 16 months. The genetic, degenerative disease affects every aspect of my life,” she continued.

“It is because of my ambitions, my wanting to forge ahead that I couldn’t deny my future. What will happen when my disease, my symptoms, and my body trap me in this progressive suffering? The importance of my personal freedoms and values allow me to live my joy.”

Lamb was one of two plaintiffs in the case. Robyn Moro, who suffered from Parkinson’s disease was initially denied medical help in dying because her natural death was considered reasonably foreseeable. She died at the age of 68 in 2018.

Outside of the legal case, doctors across B.C. have worked to interpret Bill C14’s reasonably foreseeable future clause, which requires physicians can ensure, without a doubt, that the death of a patient is probable.

Slightly more than 2,600 people died with medical assistance in 2018, with 773 of those in B.C. – the highest number of such deaths compared to any other province.

Roughly 65 per cent are by those suffering from a kind of cancer. Sixteen per cent stemmed from a circulatory or respiratory system disease.

The civil liberties association said that while the case has ended in a win that will bring clarity to doctors across the country, they won’t hesitate to continue the lawsuit if a Canadian is improperly denied their right to MaiD.

“Now, agency, compassion and choice can be given to those of us who were left out,” Lamb said.


@ashwadhwani
ashley.wadhwani@bpdigital.ca

Like us on Facebook and follow us on Twitter.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

test tube with the blood test is on the table next to the documents. Positive test for coronavirus covid-19. The concept of fighting a dangerous Chinese disease.
Interior Health records third COVID-19 death

A new community outbreak was reported at Okanagan Men’s Centre in Lake Country

The Spences Bridge Improvement District is looking for someone to fill the position of fire chief, and is also looking for people willing to stand as a candidate for the SBID board; elections will take place at the AGM on Nov. 28. (Photo credit: Barbara Roden)
Candidates for trustee, fire chief wanted in Spences Bridge

Elections will be held during Spences Bridge Improvement District AGM on Nov. 28

Looking west from the Mesa to the Ashcroft Reserve at the start of the Elephant Hill wildfire, July 7, 2017. Students at Desert Sands Community School are looking to interview locals about their direct experience with the 2017 wildfires. (Photo credit: Barbara Roden)
Students looking for people to share their 2017 wildfire stories

Desert Sands Community School students want to speak with residents about wildfire experiences

BC 2020 election graphic
Elections BC estimates 52% of BC voters cast a ballot this year

Results are down from 2017, and final counts will have to wait until mail-in ballots are tallied

An operator works to clear the culvert at Quartz Road in Cache Creek during flooding in April 2020. The Village of Cache Creek is looking for local contractors who want to go on a list for any work (emergency and non-emergency) that is needed. (Photo credit: Barbara Roden)
Village of Cache Creek calling all contractors willing to work

Plus a Halloween drive-in movie event, an AGM, Christmas market news, and more

A woman wears a face mask and plastic gloves while browsing books as a sticker on the floor indicates a one-way direction of travel between shelves of books at the Vancouver Public Library’s central branch, after it and four other branches reopened with limited services, in Vancouver, on Tuesday, July 14, 2020. (THE CANADIAN PRESS/Darryl Dyck)
B.C. reports 234 new COVID cases, 1 death of senior who had attended small birthday party

Roughly 5,700 people are isolating due to being exposed to a confirmed case

A study by SlotsOnlineCanada notes there is at least 88 hours of top-rated horror movies for Canadians to consume this Halloween. (Unsplash)
Spooks and Chill study reveals Canada’s favourite horror flicks

88 hours of top-rated horror movies can fill COVID-19 Halloween

A nurse performs a test on a patient at a drive-in COVID-19 clinic in Montreal, on Wednesday, October 21, 2020. THE CANADIAN PRESS/Paul Chiasson
Interior Health reports seven more COVID-19 cases

Eighty-nine cases remain active, none of whom are currently hospitalized

Burnaby RCMP responded to a dine-and-dash suspect who fell through a ceiling in March 2020. (RCMP handout)
VIDEO: Suspected dine-and-dasher falls through ceiling of Burnaby restaurant

A woman believed to be dashing on her restaurant bill fell through the kitchen ceiling

Join Black Press Media and Do Some Good

Pay it Forward program supports local businesses in their community giving

A can of Canada Dry Ginger Ale is shown in Toronto on Thursday Oct. 29, 2020. The maker of Canada Dry Ginger Ale has agreed to pay over $200,000 to settle a class-action lawsuit launched by a B.C. man who alleged he was misled by marketing suggesting the soda had medicinal benefits. THE CANADIAN PRESS/Joseph O’Connal
B.C. man’s lawsuit over marketing of Canada Dry ginger ale settled for $200K

Soda’s maker, Canada Dry Mott’s Inc., denied the allegations and any liability

Vancouver Island-based Wilson’s Transportation has expanded to fill some of the routes left unserviced by Greyhound as of Nov. 1, 2018. (Black Press files)
B.C. bus companies say they need help to survive COVID-19

Like airlines, motor coaches have lost most of their revenue

A deer was spotted in October 2020 in Prince Rupert, B.C., with a bright pink yoga ball stuck in its antlers. (Kayla Vickers/Chronicles Of Hammy The Deer Official Page)
Hammy 2.0? Prince Rupert deer spotted with bright pink yoga ball stuck in antlers

The BC Conservation Officer Service is aware of the deer roaming around the city

RCMP. (Phil McLachlan - Black Press Media)
Kelowna Mountie hit with 2nd lawsuit in 2 months for alleged assault

Const. Julius Prommer is accused of breaking a woman’s knee during while responding to a noise complaint

Most Read